About the ITP Support Association

Charity Registration No. 1064480

The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (Idiopathic Thrombocytopenic Purpura) by providing:

Patient/parental/antenatal information and support.

"Listening ear" contact with nominated volunteers

 

An information pack

 

A quarterly journal,The Platelet

 

Easy to read booklets and factsheets on ITP and associated interests

 

Advice on referrals for difficult or refractory cases

 

Guidelines for schools

 

Protocol for dentists of affected patients

 

Annual conventions featuring leading ITP specialists.

 

Internet forums, Facebook etc.

The ITP Support Association is a wholly independent UK organisation and registered charity giving support and information for patients with ITP.

We work with the medical profession in order to advance the knowledge and treatment of ITP by:-Funding research into ITP. (We do not fund research that involves any testing on animals)

 

Occasional funding of salaries to pilot a new ITP project (eg. funding ITP nurse, registry co-ordinator, research scientist)

 

Running occasional surveys and collating information

 

Providing feedback on patient concerns to specialists and drug companies

 

Medical seminars for haematologists, paediatricians and other health professionals

We are funded mainly by donations and the fundraising activities of volunteers and friends of the Association. We also receive sponsorship from companies involved in research and the treatment of ITP.